Not sure how much more I can take.
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Hi Daffodil
I have just read your post and I will put my 'thinking cap' on and reply over the next couple of days with any thoughts/ideas that may help.
Hopefully other members will reply in the meantime. x
I have just read your post and I will put my 'thinking cap' on and reply over the next couple of days with any thoughts/ideas that may help.
Hopefully other members will reply in the meantime. x
Hi Daffodil
First thought popped into head! Do you belong to your local Carers Group? They would normally have a wealth of information and are very good at signposting you to services in your area. The national charity is Carers UK but I believe all counties have a regional Carers Group.
First thought popped into head! Do you belong to your local Carers Group? They would normally have a wealth of information and are very good at signposting you to services in your area. The national charity is Carers UK but I believe all counties have a regional Carers Group.
Hello Daffodil,
Im so sorry to hear you are struggling and hope you eventually get the right level of support for your son. Obviously I don't know what neurodiversities your son has but it may be worth contacting the National Autistic Society for further advice and support. A lot of resistance from the authorities come down to available financial budgets and very sadly people have to fight to access the right services. There is a very useful document which was available many years ago and I think it was called Signpost to or for Success. It outlines government legislation to say care should be provided on "need" and not financial availability. The problem you have as you say one department have their own rules and guidelines and they are not consistent with another. I would demand a meeting with a senior manager at SS and insist they provide the support your son is entitled to, they should arrange an MDT as a matter of urgency given the trouble your son is in now, if he has been diagnosed as vulnerable he is entitled to lots of help and support. If you continue to meet resistance make an appointment to see your MP, it's amazing how their intervention can support your battle. It's very unfair we have to fight for what is right but you will get that help he is entitled to. I hope you get a resolution soon, this is very exhausting as you say when you are dealing with everything else. Please keep us updated and continue to stay strong.
With best wishes xxxx
Im so sorry to hear you are struggling and hope you eventually get the right level of support for your son. Obviously I don't know what neurodiversities your son has but it may be worth contacting the National Autistic Society for further advice and support. A lot of resistance from the authorities come down to available financial budgets and very sadly people have to fight to access the right services. There is a very useful document which was available many years ago and I think it was called Signpost to or for Success. It outlines government legislation to say care should be provided on "need" and not financial availability. The problem you have as you say one department have their own rules and guidelines and they are not consistent with another. I would demand a meeting with a senior manager at SS and insist they provide the support your son is entitled to, they should arrange an MDT as a matter of urgency given the trouble your son is in now, if he has been diagnosed as vulnerable he is entitled to lots of help and support. If you continue to meet resistance make an appointment to see your MP, it's amazing how their intervention can support your battle. It's very unfair we have to fight for what is right but you will get that help he is entitled to. I hope you get a resolution soon, this is very exhausting as you say when you are dealing with everything else. Please keep us updated and continue to stay strong.
With best wishes xxxx
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Hi Daffodil
I just had another thought that may be of help to you.
It seems you are doing all you can to try and access all the right services for your son and quite possibly be going around in circles as you son may fall through gaps in services (hope that makes sense)
Have you thought about looking at support/advice that local charities may provide in your area? I am only suggesting it as you may be able to also see what other young people with autism, ADHD, etc are receiving in your local community by connecting with other parents maybe? This is sometimes a good way to be made aware of services that you have not come across.
I have found over the years that local charities are also very good at signposting you to services that are available to you with the situation you find yourself in at the time.
Your local MIND charity may also be able to offer some advice. If you want to tell them all that has been happening to you and your son you could also make contact anonymously and still ask for advice/support.
I hope this information may help in some way. x
I just had another thought that may be of help to you.
It seems you are doing all you can to try and access all the right services for your son and quite possibly be going around in circles as you son may fall through gaps in services (hope that makes sense)
Have you thought about looking at support/advice that local charities may provide in your area? I am only suggesting it as you may be able to also see what other young people with autism, ADHD, etc are receiving in your local community by connecting with other parents maybe? This is sometimes a good way to be made aware of services that you have not come across.
I have found over the years that local charities are also very good at signposting you to services that are available to you with the situation you find yourself in at the time.
Your local MIND charity may also be able to offer some advice. If you want to tell them all that has been happening to you and your son you could also make contact anonymously and still ask for advice/support.
I hope this information may help in some way. x